Persons involved in the project:
Arlene Wilkie
Director General SAFE
e-mail
Carolione Moye
Communications lead
e-mail
Description of the institution:
The Stroke Alliance for Europe (SAFE) was launched in October 2004, and was born out of a strategic workshop held in the European Parliament in June 2003 which led to a declaration calling upon the European Union and its Member States to tackle stroke as a preventable catastrophe. SAFE represents a range of patient organisations across Europe whose mutual goal is for a world where there are fewer strokes and all those touched by stroke get the help they need. By combining the resources of patient organisations across Europe SAFE is working for a better stroke prevention, more effective stroke care, greater public awareness and more research activity within Europe. SAFE engages in activities such as campaigning, education and research, which contribute to the advancement of stroke prevention, acute treatment, and the improvement of the quality of life of stroke survivors, their families and caretakers. SAFE and its members have significant experience in understanding patient needs and in running patient information campaigns. SAFE has experience partnering with other large European research initiatives.
SAFE is participating in WP4 (Ethics, safety, and patient reported outcome measurement) and WP7 (Dissemination, transfer, scientific data pooling and sharing).